Hurry Up and Die Already

 

“Hurry up and die already!”

That’s what I’m hearing from my government and the pharmaceutical companies.

I collect $2500 a month from Social Security, out of which the US Government takes $202 as a premium for my Medicare coverage.  That leaves me less than $2300 to cover all the household expenses – the mortgage, utilities, the car payment, etc.  In addition, Medicare requires a 20% co-pay for my Remicade infusions – currently that 20% is just over $400 every six weeks.  My annual out-of-pocket maximum for Medicare is $8,500, which is roughly 28% of my annual income.

Thank God my husband also collects Social Security, but his monthly allotment is only enough to cover his own Medicare, his own medical expenses, groceries for both of us,  and Puppy Cody’s dog food and vet bills.  At least we won’t starve any time soon, although we have had to cut back on all non-essentials.  The government won’t help us with food; I already applied for SNAP (food stamps) and was turned down because our income is too high (really???).

Push came to shove when the utilities started to rise.  As I mentioned in previous posts, I applied for and was able to receive HEAP (for heating) and EEAP (for electrical services).  That helps a lot, but the medical expenses are still a struggle.

In desperation, I asked my gastroenterologist’s staff for help.  Bear in mind that I’ve spent my entire life working and supporting myself and my family, without ever asking for assistance in paying the bills.  It was embarrassing to be in such a position.  God bless the young man in my doctor’s office who spent hours on the phone trying to find a program that would work for me.

Turned out the pharmaceutical company does not provide assistance for people who are on Medicare.  However, people who are working and have commercial insurance can qualify for the free drug program.  How is that fair?  When I was working and had commercial insurance, I didn’t need help with my Remicade costs; now that I’m struggling and would be happy with any amount of assistance, I can’t get it.

There are private foundations set up to help with medication costs, and that young man in my doctor’s office contacted every one of them, only to learn that none of them have any money left.  He even contacted my pharmacy, but since Remicade is by infusion and is a Medicare Part B medicine, the pharmacy can’t help, either.

Something has to give.

Ballrooms, arches, refurbished decorative pools, new statue parks, and pointless wars are top priorities for our current administration, while cuts are being made to programs designed to benefit this country’s neediest citizens.  Can’t someone, somewhere have some compassion for us senior citizens?  We shouldn’t have to face the end of our lives trying to decide between housing, food, and medical care.

That’s enough of a rant for today.  If you have extra money (please stop laughing) and are willing to part with it, I will gladly accept monetary gifts.  I’m no longer too proud to do so.

Hugs, all.

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I love to hear from my readers. You may comment on this post or email me at cordeliasmom2012@yahoo.com
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Image by Cordelia’s Mom/TeddyRosalieStudio

Posted in Health, That's Life | Tagged , , , , , , | 2 Comments

Dynamic Me

 

WARNING: If you’re squeamish about medical stuff, especially female medical issues, you may want to skip this post.

As a lead-up to my scheduled bladder surgery, I had to undergo a number of medical appointments and pre-surgical tests.  One of those tests was a bladder dynamic study.

Now, I’ve never had that test, nor do I know anyone who has undergone it, so really I had no idea what to expect.  Sure, I was able to find information online about the procedure itself, but saw nothing posted by people who had actually taken the test.  So, for those who are interested, consider this my public service announcement.

One thing I love about my urogynecologist is that her practice consists mainly of female patients in my own age group.  For years, I refused to go to a gynecologist simply because I would feel embarrassed by having to sit in a waiting room full of young pregnant women who might wonder why such an old lady even needed OBGYN services.

In addition, my new doctor has her office set up in such a way as to make it physically comfortable for us older (and some of us, larger) ladies.  It’s a short walk into the building, with no long interior hallways.  The waiting room has comfortable seating, including some wider chairs for those of us who need them.  And, I discovered, if you need to give a urine sample, the bathrooms are set up adjoining the exam rooms so there’s no need to amble across or down the hall.

My only complaint, and it’s not really a complaint, is that my doctor is into teaching, so she often has interns and residents come into the room with her.  Normally that wouldn’t bother me, so long as they’re just standing around observing – but on my very first visit, there was a young, cute male resident who got to do everything my doctor did.  He was very professional and compassionate, but really, I didn’t need two people getting all up in there.

Having said all that, let’s get to the procedure in question.

Fortunately, for the bladder dynamic study, the only people in the room were me, my doctor, and one of the female nurses.

To begin with, I was told to sit on the exam table and pee into the plastic container at the foot of the table. Say what?  Have you ever tried to pee anywhere other than a room designed solely for that purpose?  I haven’t.  And even though everyone had left the room to give me privacy, I simply couldn’t do it.  Not that much of an issue, though, as I knew a catheter would be placed in a few minutes anyway.

Subsequent to my pee failure, I was asked to move up onto the table itself.  Instead of the normal exam table, I was in the “procedure room” where the table had nice, wide footrests instead of those awful stirrups.  That was much more comfortable for someone like me, with at least one bad knee.

What wasn’t comfortable was the procedure itself.

Sure, I knew that a catheter would be placed, and I suspected that the doctor would need to “get up in there” – but what I didn’t expect was that (in my case, where the bladder was fully prolapsed) a probe would be inserted into my rectum, apparently to capture the electrical nerve impulses.  I was unable to resist commenting to the doctor that I felt like I was being medically tested on a spaceship, at which point she replied, in effect, “yeah, we abducted you.”  That little bit of humor made me feel much better about my surgeon; at that point I think I began to view her more as a partner in my medical journey, rather than just a professional overseeing my care.  Since my life will literally be in her hands in another week or so, that relationship is very important to me.

So, for those who don’t know, the bladder dynamic study consists of filling the bladder to capacity and testing the nerve impulses.  Not the most enjoyable of experiences, but it wasn’t as awful as I thought it would be (other than the probe).  Afterwards, I was asked to move back down to the foot of the table and try to empty my bladder.  Although it took a few moments, this time I succeeded – despite the fact that both the doctor and the nurse were watching.  (Years ago, I was told that once you’ve birthed a child in a hospital, there’s little to no modesty any more.  I believe that’s often true.)

Apparently the test went well enough, and no leaking was  discovered.  That means I will be able to avoid any additional repair work to the bladder itself.  My surgery will consist of repositioning the bladder, inserting a “sling”, and then sewing everything up.

Sounds awful, doesn’t it?  But at least I will be unconscious during the whole thing.

Hopefully, in a couple of weeks I’ll be able to report that the surgery is over and all went well.  I’ll try to avoid all the graphic details, not that I’d remember them anyway or, for that matter, even be aware of them.  In  any event, my surgeon has assured me that the procedure is fairly routine and is tolerated well by the majority of her patients, most of whom are my age or older.  She also indicated that the pain level should be low to moderate and that simple Tylenol should be sufficient to ease the pain, but that prescription medication would be available if needed.

Hugs, all.  Your support in my mini-journey has been overwhelming.  I have so many awesome friends, both online and offline.  Until now, I wasn’t truly aware of that – and I’m deeply grateful for it.

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I love to hear from my readers. You may comment on this post or email me at cordeliasmom2012@yahoo.com
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Image by Cordelia’s Mom/TeddyRosalieStudio

 

Posted in Health, That's Life | Tagged , , | 6 Comments

Are We Having Fun Yet?

 

Sometimes timing is everything.

Like just managing to catch your dog with his head inside a stuffed toy (thank you, Cordelia!).

Which just goes to show that pretty much everyone is a better photographer than I am.

[sigh]

But I’m ok with that.  These days, I am unable to do photography, for two reasons:  (1) my computer is full, with no room for new photos until I manage to clear out a bunch of crap; and (2) I am essentially disabled and housebound at the moment, due to the fact that I am awaiting surgery for a prolapsed bladder.

Years ago, I asked my then primary physician if it was possible for a prolapsed bladder to actually fall out of one’s body, and he said it was highly unlikely.  Relying on his “expertise,” I ignored the situation – until I had that bad fall a couple of years ago, after which it seemed I lost a couple of inches in height, and yes, the bladder subsequently fell out completely.

(BTW, that was the same doctor who later told my husband he simply had a muscle strain when, in fact, he had a ruptured appendix.  Needless to say, we are no longer seeing that doctor.)

Now I understand why walking became so difficult.  It wasn’t just laziness, as my husband seemed to think (he has since revised his opinion, now that my surgeon has confirmed that I’m basically trying to walk around like a cow with a full udder dragging under her).

So, for now I stay as still as possible, and hope that once the surgery is completed in a few weeks, I’ll be able to start moving around normally again.  I’d love to be out of pain and able to rebuild my atrophied muscles.  Summer is just around the corner and Mother Nature is calling to me.

If nothing else, I’m hoping to be able to start driving myself again. Currently, hubby has to drive me to all my appointments because, even though I have a handicapped sticker (and a cane), I find it very difficult to walk from the parking lot into any building, so I rely on him to drop me off right outside the front door.  So annoying.

And I never thought I’d say [write] this:  I am so looking forward to surgery.

Fingers crossed.

Of course, I’ll have all those un-planned-for medical bills.  There have been a number of medical appointments and pre-surgical tests for which there are co-pays.  My Medicare Advantage insurance will cover most of the testing and the surgery itself, but the out-of pocket costs will still add up and will need to be taken from savings.

[double sigh]

The good news is – while we were unable to qualify for SNAP (food stamps) because we were only a few hundred dollars over the maximum income limit, we have received HEAP (for heating) and EEAP (for electric).  Plus (and this is a biggie), my GI doctor has agreed to try to help me obtain assistance for my Remicade infusions – not having to pay that nearly $400 every six weeks would go a long way towards stretching the very, very tight budget.

I don’t know if I’ll be posting again any time soon, so wish me luck.  If you’re religious, I will gladly accept any prayers for a successful surgery and recovery.  I admit to being scared that my advancing age will finally catch up to me on the operating table.  What a  bummer that would be.

Hugs, all.

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I love to hear from my readers. You may comment on this post or email me at cordeliasmom2012@yahoo.com
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Image by “Cordelia”

Posted in Health, That's Life | Tagged , , , , , | 13 Comments

Time Passes

Another year down.

Once again, I have allowed my WordPress subscription to renew automatically. But at least this year, it was an active decision.  My stats have increased ten-fold recently, and while I’m pretty sure it’s due simply to an AI glitch of some kind, I would hope that at least some of those new readers are actual people.  Just in case, I opted to keep this site live so all those newly found fans can catch up on those hundreds of wonderful posts I’ve published over the years.

Yes, the cost of the renewal subscription is a bit of a strain on an already stretched-to-the-limit budget, but hopefully will be worth it.  ‘Cause, you know that somewhere among that plethora of new fans must be at least one publisher who’s dying to add me to their roster of ups-and-comings.

One can only hope.

Of course, any such interest would have to be based on past posts as I so seldom publish anything currently.

These days, I don’t have much to say.  Most days are humdrum, with no events so exciting or so devastating that I feel a need to write about them.  Probably that’s a good thing. There’s much to be said about living life on an even keel.

Sure, there are many national events that I could write about, but these days in the U.S. it’s best not to say or write anything that could be even remotely construed as critical of the current powers that be.  Heck, even writing a negative review about a book or movie could probably get one branded as a “domestic terrorist.”  ‘Nuff said.

So basically I just muddle by from day to day, taking paid surveys to build up a little extra cash for my Amazon orders, and listening to hubby yap 24/7 about this, that and the other thing (don’t ask for specifics, I stopped listening a long time ago).  At this time of year, it’s been too cold and snowy to even go outside, so mostly I’m housebound except for medical appointments.  Perhaps come spring I’ll manage a little more motivation – who knows?

The good news, however, is that thus far we’re able to just squeak by on only our Social Security benefits without having to dip too much into the limited savings.  Of course, it means giving up all the fun stuff like eating out, ordering in, or buying wine, but I’d rather sacrifice those than have to give up my home.  Puppy Cody loves her backyard, and hubby and I love our privacy.  Squeaking by is good, right?  And it did help that although we were unable to qualify for SNAP benefits (food stamps), we did manage to get HEAP – so at least we don’t have to be overly stressed about those heating bills during the current cold snap.

Things could always be so much worse.

How’s it by you?

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I love to hear from my readers. You may comment on this post or email me at cordeliasmom2012@yahoo.com
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Image by Cordelia’s Mom/TeddyRosalieStudio

Posted in That's Life | Tagged , , , | 22 Comments