Let’s try this again. WP is making us jump through all kinds of hoops to find that reblog button, but I did find it.
Again – this post is by Victo Dolore. No one should be treated in such a way by a medical specialist, and especially not on the very first visit!
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A few years back when my migraines where having a serious effect on my family, they arranged for me to see a “highly respected” neurologist specialising in headache and migraine. As I was describing my symptoms, he would frequently interrupt me with “Nonsense. That doesn’t happen with migraines”. Other family members also described their observations of how I behaved during attacks, including written statements from family members who were unable to be present.
It was very clear to us all that he didn’t believe us, although he didn’t say so directly. We felt we were being interrogated instead of being part of a consultation. His report to my GP completely ignored every symptom that wasn’t consistent with the textbook definition of a typical migraine with aura. None of these symptom were of particular concern to myself or my family, and were not the reason why he was consulted. As a result, my marriage of nearly forty years almost ended in divorce.
I was persuaded to see a number of psychiatrists and psychologists in case the symptoms were “all in my head”. It was only because their conclusions were that I was in remarkably good mental health considering the symptoms I had to endure, and their help in devising techniques to cope with the worst effects that I am still married. And it was also where, at the age of 60, I was diagnosed as being on the autism spectrum. That knowledge in itself, has been of significant value in learning to cope with the struggles of life.
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Thank goodness you did finally get the proper diagnosis.
When my husband and I were first married, he would often suffer from what the doctors called “panic attacks” (rapid heartbeat, shortness of breath, etc.) They sent him to various psychologists and psychiatrists. For years, we thought it was all in his head, and I’m afraid I wasn’t as sympathetic as I could have been. One doctor even commented, “Maybe you should give up the marijuana” (we were young, but never did drugs of any kind). Finally, he wound up in the ER and they found out he had a heart condition (which has now been passed down to my daughter, unfortunately). Sometimes doctors are just so full of themselves that they don’t listen to their patients.
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What diagnosis? The autism is unrelated to the migraines. I still have migraines more than 20 days each month, and I am still picked up in public by the police and/or paramedics several times a year because they think I’m very drunk, high on drugs or suffering a stroke – none of which are true.
I’m told I have “atypical migraines”, but so far there has been no effective treatment. I have learnt some skills that allow me to cope with the pain, but that has no effect on the other symptoms such as loss of coordination and balance; visual auras and blind spots; difficulty in processing language; extreme sensitivity to light, sound, and smell; and Impaired consciousness.
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Sounds horrible. I can’t imagine going through that constantly.
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Thankfully it was a gradual process over more than 40 years. I am able accept the situation. It’s usually the attitudes and response of people I come into contact with that make my condition a “disability”.
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